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Wednesday 2 January 2013

Happy new year

Hello all my fitness friends and family,

I hope you've had a lovely Christmas and a great new year. I had a great time with family over Christmas then spent the new year partying with friends. Was great to be returning to some sort of normality So update on the heart/stroke situation;Everything seems to be going in the right direction. I had a scan on my next in november and that showed a had no furring of the arteries, but did highlight ectopic beats in my heart that were rather frequent. So I had to wear a 24hr heart rate recorder to monitor how many beats I was experiencing. I am currently sat a Liverpool heart and chest hospital awaiting the results from that test. My speech and movement has now returned back to nearly normal although my cardiac rehab team at the countess of Chester have been working on core stability coordination and balance. I also get very tired easily, which doctors and surgeons have said will take up to a year to get over. All in all though I am noticing massive improvements. I'm beginning to exercise a little and have a few classes in place for end of January. It's that fine line of getting back to work and not over doing it. I have to say I'm very excited and looking forward to getting back to it. my plans are to develop an outdoor fitness centre in delamere forest which I'm working on and to develop a plethora of ante and post natal classes locally. So things are looking up and lets hope today's results are positive and I can properly move forward!

Sunday 11 November 2012

12 weeks post open heart surgery

Hi everyone, What a night mare week. At week 10 post open

12 weeks post open heart surgery

Hi everyone well, where do i start. I went for my 10 week check up 2 weeks ago and the day before I had received my bloodt test results saying how good everything was and infection levels were right down. i walked in, showed her the results and we were made up,. Then, she routinely performed a few tests on me and when she was checking to see if the sternum had healed together she said she felt an arrythmia. She sent me for an ECG and it was confirmed that my heart had gone into AF. AF s where the rythmn of the heart is not regular and can only be settled with cardioversion, whereby they stop the heart, shock it then re start it. I couldnt beleive it but was made up she had found it. They booked me in a week later and i was to stay in a couple of extra days, just because i was to be put on betablockers.So the day arrived and i was taken in by my step mum who dropped me off at the entrance and went home. I got admitted to the day ward whereby they administered ,e with a own and paper knicker ha ha. i got changed and they did all sorts of scans o me and an ecg. I was just about to go down and the consultant looked at the ecg and said my heart was no longer in af. I asked if this normally happened and she said no. So she got the cardio consulant over who looked at the previous weeks and my heart hadnt gone into AF at all!!! I was expreiencing ectopic beats in the heart. He agreedto have me on a 24 hr monitor to record how many beats i was having and whether i could live with these ok. so I was discharged. So a week went by. Friday 2nd November, me, April and her 2 children went to black pool illuminations. It took us.....gues how long?????.......3 hours to get there. We were all so pissed off. However when we got there, it was defo worth it. We stopped off, brough some cock rock ha ha ha not really, hadsome fish and chips nd then came back. I was sooo exhausted after driving all that way. I was up early on Saturday, and off we wnet to Anglesey. Me, Bro, mum and rich. We went walking around Snowdonia, then to a beach near where we were staying. We arrived at the hotel and 4pm. We went for a walk on the beach. Then had a couple of hours to rest, and then we enjoyed a nice meal in the restuarnt. The hotel was lovely, with the rooms being amazing. We got up the next day and we went down to South Stacks where mum stayed in the car and we went down 365 steps to the sea and back up again. It was lovely, and then we drove all the way back home. Monday arrived and i wke feeling jaded and so i went to get a cup f tea, and then returned back to bed. I then thought about going the see grandad in the care home. He had been hospitalised since March 16th, the day of my graduation. His parkinsons had become full blown and he was so painfully thin and in a world of his own. I fed him with his liquid meal and noticed none had been going in his mouth, just all down his top, and over his t-shirt. So they came to change him and thats when i noticed how thin he was. He must have weighed 5 stone wet. I then fed him some more I spent ages talking shit to him, rubbing his arm, rubbing his forehead. I knew that was the last time i was going to see him, and I couldnt bring myself to leave. I looked at him at one point and he was crying, a tearwas running down his face. I know that he knew that was it. I finally left and I went home and sobbed all night. my mum came up to see me before bed and asked if i was ok, sheknew i was a broken woman. I went to sleep that night and woke at 3am. I felt weird. I couldn't sit up in bed and when I had done, I felt like my legs didn't belong to my body. I couldnt move them properly. I went to the loo, came back up, lay in bed, and then was awake about 2 hours. It was mad because i had the mst banging headache ever. IWoke up at 8am and went to go to the loo. Again, i was unsteady on my feet and I was like an old woman getting down the stairs.I got a cup or tea and went up to bed. Ithen lay there til 5.30pm. I had tried to send a number of texts and they were jumbled but i couldntwork out what or how to write stuff. I tried to phone my mate but I couldnt speak. It was horrendous. Whe mum came back from work that evening she shot upstairs and as soon as she saw me she phoned 999. The ambulance man came, they got me in the van and blue lighted us to a and e. When I was there, dad and Louise were there and everyone was worried sick. I couldnt tell them what was wrong. My right side was weaker than left. I just didnt have the vocabulary in my head. After tests and scan etc, I was admitted to the medical assessment ward. In the morning, the consultant came to assess me and they decided I needed to o to the stroke ward. Later that day, the consultant came up and i had undergone a stroke. Frther test revealed I had a clot in my heart that was caused from the warafrin being so low. I was fuming, but couldnt express it properly. They discharged me 2 days later on a higher dose wafarin and injections in the stomach. I got home and went to bed. The next morning I woke up and the Louise came to tell me that my grandad had passed away. What a blow!!! I was in shock, we went to see my dad where i just cried in his arms, and then went to see my nan where we just spoke about him etc. This has to have been the worst week ever. 3 days later and i have nearly got the use of my right side back but i am stil reallyconfused. I cant get my words out and feel very overwhelmed when im in public.

Monday 8 October 2012

E-books for sale

Hi everyone, I hope your well. Im am in the process of writing some e-books and am looking to get them released before christmas. I was thinking, in anticipation of this, would it be a good idea to purchase a reading device to read these e books from? Here's the best one's ive come across. They would make an excellent 'Dear Santa' present!!! Check out the links below or the cheapest one available at Amazon would be the one below. Give me some ideas on content you would like me to include in these books. Ive got a great Curry receipe book ive written and also a healthy cookbook too. Let me know if you'd be interested in knowing more. Lots of love Darlo x

Thursday 6 September 2012

3 Weeks Post Open Heart Surgery 2

Top of da morning to you all.. I haven't blogged for so long as I haven't managed to master the art of uploading pictures from the ipad to the blog site. But I’m home now (yipppeeeeee) so I can blog to my heart’s content (pardon the pun!!) So, where do I begin? I was admitted to hospital on 6th July 2012, for the 4th time, as id been feeling unwell and was suffering with the rigours (very cold, shaking then temp spikes to 40) and id remembered this as being a tell take sign of endocarditis (heart infection. So they put me on IV antibiotics for 6 weeks, every 4 hours. This meant a line had to be put in me, as my veins wouldn’t play, and cannulas were a nightmare to get in. So I had a Hickman line put in, as I had my first Trans oesophagus echo (internal scan of heart) under a general anaesthetic. once this scan was done, the surgeons came round and dealt me the news that unfortunately the scan showed my new valve had become infected and the bacteria had eaten away at the tissue that was securing the stiches in, and I now had a leaky heart valve, which if left for too long would put the heart under too much stress and heart failure would be inevitable.The worse news was that the bacteria was a particular one that had built up a resistance to many antibiotics, and therefore they had to get the right combination of antibiotics. If not the bacteria basically eat away at healthy tissue and organs of the body, once it gets to a certain level in the blood stream its basically untreatable. This scan was to be performed every week (5 in total makes me queen of the TOE's apparently)so they could monitor the deterioration of the heart, as well as having the antibiotics to help minimise the bacteria levels, and this was how they could make sure I wasn’t deteriorating too quickly.
(Hickman Line) When they told me I had a second heart infection I was devastated (think I’ve previously covered this in my last blog. Everything went fuzzy and I couldnt focus on anything, but still kept smiling and cheery. Didnt see the point of mopsing round, it doesnt acheieve anything doing that, so in the spaces where I wasnt having the antibiotics, i'd slip off and nip to Liverpool one with friends and family he he he. I think we'd even had a lovely glass of red wine one afternoon when the sun was shining. I also went to see the Monet art exhibition at the Tate and the Rolf Harris exhibition at the Walker gallery. So 14/8/12 arrived (night before my operation), and I had to say goodbye to my mum, my dad and my brother. No matter how much of a positive person you are, there is always that doubt in your mind, that this could be it. Especially a second heart operation, so close to the 1st. The nurses sedated me slightly in the evening, (so you receive a better sleep), and then again in the morning once i'd had a shower and dressed into the delightful paper knickers and gown. To be honest, I don’t remember leaving the ward to go to theatre. I do remember being in the room where they put you to sleep. I was nervous but just wanting it all over. I then remember waking in a strange room, not where I had done previously and they said I was in full on intensive care. It wasn’t as scary as last time on awakening, and the breathing tube didn’t freak me out, but I did insist I was ok to breathe without it,and once they felt I was stable breathing on my own they replaced this with an oxygen mask. There had been a few complications during the operation and I'd suffered massive internal bleeding and at 12pm the surgeon was called back out and they weren’t sure if I might need to go to theatre again. Luckily not. As I came around more i was aware that I had wires in my neck, loads in my wrists, and drains in my chest. I was morphined up to the eyeballs and in and out of sleep. However, I do remember trying to stretch my legs and my left one wouldn’t move AT ALL. The pain was excruciating in my leg, like nothing I’ve ever had before. I asked them why and the surgeon had had to make an incision in my groin to access the femoral artery so they could pass some equipment to the heart via the artery. Infact they didn’t actually need to use it in the end, but had made the incision just in case. When the nurses came to roll me, so I didn’t get pressure sores (attractive!!!) I was crying and screaming, it was sooooo bad. The actually chest wound where they'd cracked my sternum and peeled back the ribcage didn’t hurt much at all, it was the leg. Family came to see me, but I was so off my head I was just chatting rubbish (no change there then). Id fall asleep mid conversation, TOTES WEAK!!!!and say to them, cant you see that person in the room opposite on the cross trainer ha ha... When I closed my eyes, id have loads of vivid mad images floating around. The actual operation they had performed was an aortic valve replacement with aortic root replacement, and they had used a mechanical valve.Which means life long warfarin. 3 days later I was taken off intensive care to a ward. Id actually stayed in the same room a few weeks back. The nurses were great. I was so helpless because I actually couldn't move at all. My leg was really getting me down because I needed to get up and about to reduce the risk of a chest infection, but physically couldnt at all. It was heart breaking. I could see my career just take a nosedive and this was definately rock bottom for me. It took 2 nurses to get me even onto a chair, right by the side of the bed, to wheel me to the shower or toilet. They had to actually move my leg for me, and id be crying when they did, but was determined to push it, thinking it would eventually be ok.
(I had 3 drains in my chest, pacing wires in chest and various other tubes and stuff). In the end I just said to the surgeons this is getting no better, I couldn’t feel my leg it was numb, but if I tried to weight bare or move it, it was so so painful. They agreed it shouldn’t be this bad a week later, so they decided to operate. So 1 week after the open heart surgery, I was back in theatre. Once I was back on ward, I could tell it was better, although there was still a lot of numbness in the leg, and it was very sore around the wound, but that kind of pain is fine, you know it’s going to get better. Indeed, what had happened in the heat operation, was, they’d sewn it up tightly, because I was on warfarin, but they think that nerves had gotten trapped. Anyhow......... That evening I felt really cold, and then I began to get the spikes in temperatures. My heart sank... surely not another heart infection. I wasn’t sure I could mentally, or physically go through it a third time, and I knew my family would be totally totally devastated. The nurses asked me to pee in a small bottle, (next bit a little gross) and as I was trying to aim my pee (ha ha ha ) I noticed my left groin area was inflamed and massively swollen and was tracking down my leg. I alerted the nurses who did the doctors and my surgeon was called up. He thought maybe I had a haematoma, and said we need to re operate to remove it. So the next day, back to theatre. By this time, everyone in theatre knew me, it was almost embarrassing because they were saying...."gosh, not you AGAIN!!!!" On opening me up again, they couldn’t find a haematoma, and they diagnosed cellulitis, an infection in the wound. So I was back on IV antibiotics to try and clear this up and I then had another tube coming out of my leg, to drain the blood away. Instantly I felt better once Id had a couple of days of this treatment. I was starting to walk (very slowly) around the ward,and using a walker, but then the next day I took the stairs, day after did the stairs twice, and each day, Id set myself targets.
(drain in my leg) I was so pleased with how the actual heart operation had gone, because the pain in the ribcage was so minimal in comparison to last time, and I firmly believe this was because I was totally bed bound for a week after and it forced me to rest. Whereas before I’d been moving around, doing some light mobilisation exercises for the shoulder girdle etc. etc...
(1week post operation) On 4th September I had my Hickman line removed under a local anaesthetic... yeyyy... free from wires......
(2 weeks post operation) I was discharged yesterday evening and have just come back from a trip to the countess, where I’ve had a chat about warfarin and I now have weekly check-ups for this. Every 2 weeks imp back to Liverpool for check-ups, and every week I have to have infection levels checked. I’m not out of the woods just yet. I need to rest, and stay away from people with coughs, colds and infections. I’m so weak and I feel awfully rude saying to visitors they can really only stay around 30 minutes, but it really does tire me out and I’ll be like this for quite a while. I am now a piece of artwork in the form of scars and mentally it has been hard. I have had to overcome such a lot of illness and setbacks over the last 3 years. The whole episode stems from a root canal that became infected, which led to a heart infection, which damaged my heart valve further, which then lead to an abcess in the spleen, which had to be removed, so I now have a comprimised immune system. this more recent stay in hospital, I have had 2 major heart surgeries, another heart infection, 2 leg operations and a infection in my leg. This whole nightmare has been so hard for not only me, but the people around me. My aunty also passed away through all this, and my grandad put into a nursing home with full blown parkinsons, and the whole family have had to pull together so much. Without them, and the support of my friends, I couldnt have been as strong, mentally as I have been. (although I am one hard mo fo!!!! ha ha) I’m not allowed to even consider training for 4-6 months due to the strain on the heart and the aorta and also, my immune system wouldn’t cope. So for now its art work, and pottering around. I hope this hasn't bored you and I will continue to keep you updated.

Monday 13 August 2012

15 weeks post surgery 1. 2days before open heart surgery 2!

Morning everyone, I'm sure everyone is feeling a little fatigued this morning after the closing ceremony last night. Did you all enjoy it? I have to say, I secretly enjoyed the spice girls. I believe I missed Gary Barlow? I had to go to sleep at 12 ish as I would be woken at 5 ish for my iv antibiotics, but then couldn't sleep anyhow so may as well have stayed up to watch it. Well. I'm now 15 weeks post open heart surgery but unfortunately 2 days to go until my second open heart surgery.. I'm trying not to think about the operation now, just looking to the few weeks after it and hoping that all will be well this time and I can return home in a few weeks and begin to rebuild my life slowly. I'm going to be returning back to the clean eating programme once home and looking to reduce body fat to a minimum. I'm also looking for 4 other people to join me on the clean eating programme. This programme will not include any exercise at this stage. The exercise element will be implemented at week 12. I just want to see the results of the diet only. It will require you meeting up with me and me taking your measurements etc. Email me claire@chesterfitness.co.uk if you would like to join me in a few weeks on the programme. I will be doing a video blog the night before my operation and uploading to YouTube. Big hugs Claire xx